Equity in the Time of Coronavirus – Part 2

April 16, 2020

A tiny bit of RNA, enclosed in a protein coat.  The entire package is small enough that 8 billion of them would fit in a grain of sand.  The novel coronavirus doesn’t seem nearly large or sentient enough to be a vehicle for racism.  And yet….

While statistics are spotty, it appears that at least in the US, the COVID-19 pandemic is disproportionately affecting people of color, and especially African Americans.  In most places reporting data by race, the toll of this disease is far higher among blacks than others.  In Louisiana, for example, blacks make up 32% of the population but 70% of the COVID-19-related deaths.  Of course, the disease is not evenly distributed within states, but even at the county and city level, the disparities are stark.  In Milwaukee County, blacks are 26% of the population but account for 73% of deaths.  And it isn’t just deaths: blacks get the disease at a higher rate than others.  The disease rate per 1000 population is 3.5-4 times higher in black majority counties than white or Latino majority counties, and the death rate is 6-10 times higher.

Why is this?  Surely it’s not malign intent on the part of the tiny virus.  No, the virus is not racist.  But these disparities are simply the latest manifestation of the kind of structural racism that has affected the health and well-being of blacks for decades if not centuries.  Here are a few of the leading hypotheses for the disparities in COVID-19:

  1. Blacks are more likely to suffer from other conditions, especially obesity and hypertension, that put them at higher risk of severe disease or death if they develop COVID-19. While some have been tempted to blame the victim for these disparities, these are the result largely of socioeconomic and health care system factors that have systematically disadvantaged blacks.
  2. Blacks and those who are poor are less likely to have jobs that enable them to work from home. They are overrepresented in the kinds of service industries that require closer in-person contact that spreads diseases.  As a report from the Economic Policy Institute pointed out, only 9.2 percent of workers in the lowest quartile of the wage distribution can telework, compared with 61.5 percent of workers in the highest quartile.
  3. Blacks and the poor have a harder time complying with social distancing It’s great that child care is considered an essential service, but what if you cannot afford child care and you rely on a network of family members to care for your children while you go to work?  In many places, including Minnesota, blacks are more likely to have no or limited Internet access, further limiting the ability to work or conduct other necessary activities remotely.  And the idea of wearing a mask in public sounds wonderful – if you’re white.  Some black men have expressed a reluctance to do so for fear of racial profiling, and episodes of harassment show this fear is not unfounded.

And here is the human face of this inequity: I grew up in New York, my colleague grew up in Detroit.  These are both disease hot spots.  But my colleague, who is black, knows a heck of a lot more victims than I do.  The point is, these are not statistics.  They are people.

The COVID-19 pandemic has upended almost every aspect of our world.  It has brought out the best in many of us as individuals.  But it has also placed in stark relief some of the less pleasant truths about our society, and about our healthcare system.  I only hope that this virus, when it is done wreaking its havoc on us, by making plain the inequities in front of our eyes, can compel us to begin to correct them.


Equity in the Time of Coronavirus – Part 1

April 10, 2020

An irony of the present moment is that while we are forced to remain physically distant, we are in many ways drawing closer together.  I have spent more time on the phone or Zoom with family and friends both near and far than I can ever recall before.  The countless random acts of kindness I see at Children’s Minnesota and that fill the news and social media are nothing short of amazing.  It is a cliché to note that hardship tends to bring out the best in people and draw us closer together.

Except when it doesn’t.  As South African Archbishop Desmond Tutu said, “A time of crisis is not just a time of anxiety and worry. It gives a chance, an opportunity, to choose well or to choose badly.”  Unfortunately, there are those who choose badly.  In the context of COVID-19 in the US, this includes those who hoard supplies, those who choose to put their own interests ahead of the collective good, and those who opt to divide rather than unite.  The ugliest manifestation of this last tendency is the rise in racism and hate crimes targeting Asians and those of Asian descent.  As reported in The Washington Post, a group that tracks hate speech has documented “acute increases in both the vitriol and magnitude of ethnic hate” against Asians on a variety of social media platforms.  Some are as subtle as repeating terms with ethnic slurs that imply the novel coronavirus is uniquely (and even intentionally) Asian in origin, while much is of unrepeatable vulgarity.  There are also reports of harassment and physical attacks on people believed to be Asian.

My thoughts are with the many Asians and Asian Americans in our wonderfully multicultural community.  They are suffering not only the severe disruptions we are all facing, but the additional burden of being targeted by xenophobia.  Dr. Gigi Chawla, my Children’s Minnesota colleague, chief of general pediatrics, and executive sponsor of our Asian Employee Resource Group, puts it this way: “At this time of global crisis, when we so clearly need to fully support one another to get through this, it is even more painful to have Asians and Asian Americans experience the additional trauma of blame, hatred, and social isolation-ism. COVID-19 is not an Asian problem that has become global. It was not propagated by Asian people. It’s just an RNA virus that could infect each and every one of us.”

Such divisiveness is not only hateful, but potentially harmful.  The only way to fight a scourge like the coronavirus is to do it collectively.  It reminds me of many of the science fiction books I read so avidly in the past.  One approach to global crisis was the tribalist “Mad Max” method, which was invariably dystopian and bleak.  The other was for humankind to join together, typically leading to a brighter future.  As Cuban poet and anti-imperialist José Martí said, “In a time of crisis, the peoples of the world must rush to get to know each other.”

Collective challenge calls for collective action.  Collective suffering calls for mutual caring and compassion.  We are truly all in this together.


Trust in the Time of Coronavirus

April 3, 2020

“Truth makes love possible.  Love makes truth bearable.” – Rt. Rev. Rowan Williams, Archbishop of Canterbury

When I was starting out at a pediatric emergency medicine physician, I could not have told you who the CEO, COO, or CFO of my hospital was.  I knew we had them, of course, but they were an abstraction.  If I thought about them at all, it was as someone to blame when we didn’t have enough nurses, or when I was paying $100 a month (and this was almost 30 years ago!) to park 4 blocks away while just beneath the hospital there were mysterious “reserved” spots.  I didn’t know them, and frankly didn’t trust them.  While in some vague sense I knew we were a “non-profit,” it still felt like all the decisions made by executives were about making money.

And now I am one of those administrative abstractions to many people!  I think a lot about my experience as a clinician, and about what was real and what I just didn’t know about the work and motivation of those in the “C-suite.”  As far as what I didn’t know: I knew medicine was complex, but I didn’t appreciate how complex health care is.  Back then we didn’t talk about “systems-based practice” as a core competency for providers, and so I never really learned about it.  Even now, I think it is one of the harder things for clinicians to embrace.  The Hippocratic Oath compels us to think about the patient in front of us; systems-based practice compels us to think about all those patients and potential patients who are not in front of us.  Neither perspective is better, but both are incomplete.  Regardless of our role, it behooves us to consider how all of us are trying to balance the needs of each patient and of all patients.

As far as what was real that contributed to my lack of confidence in the people in suits, it was that I wasn’t privy to much.  Perhaps they did share information about the hospital’s finances and operations.  If so, I missed it; I suspect it was a combination of both.  But I doubt there was true transparency.  And if I had known then what I know now, I would have had more reason to trust those administrators and their motives.  To paraphrase Rev. Williams, truth makes trust possible.

That trust is always important.  At a time of disruption, uncertainty, and scarcity – like this time of coronavirus – it is absolutely essential.  If the people who work here can’t trust their leaders, if they question their motives, then we can’t possibly do what we need to: make the hard choices and shared sacrifices, to ensure that when the crisis passes we will emerge intact and able to continue our quest to being every family’s essential partner in raising healthier children.

All of us as leaders need to be truthful – open, honest, transparent.  We must share the information we have, even when it is scary.  We must admit when we don’t know, and ask when we don’t understand.  We must explain why we chose A over B, why we believe that choice produces the greatest good, even if the people we are talking with care only about B.  And we must be willing to adjust as new information becomes available, and be willing to admit mistakes.

Being truthful helps build and reinforce trust.  As leaders, we must also care – about our teams, and the organization.  Trust and caring make it easier to hear difficult truths.  Truth, trust, and caring: this is how we will get through this crisis, successfully, together.


The Blame Game

March 4, 2020

“Congratulations, you’re ready to be a doctor.  You’ve learned how to blame the patient first,” said the attending physician.  He had asked me – a fourth-year medical student – why I thought our patient was not responding to the medication he had been prescribed.  “He may be non-compliant,” I responded.  My intern and resident nodded approvingly.  But George, the attending physician, clearly did not agree.  I was mortified, and I could tell from the awkward silence in the work room that everyone else was as well.  This wasn’t, after all, an indictment of me.  I was merely saying what I had learned, what I had heard these and many other teachers and colleagues say countless times.  George was criticizing our entire system.

We then had a discussion of all the other reasons the patient may not be responding.  It could be the dose was wrong, or there were unacceptable side effects, or we had made an incorrect diagnosis, or the medication was unaffordable.  None of these implied the patient was at fault.  None was nearly as judgmental as that term “non-compliant.”

This was 33 years ago, and as you can tell the lesson was emblazoned in my memory.  We have come a long way as an industry in being more patient-centered – or at least talking that way.  But the healthcare system is still set up largely for the convenience and benefit of the providers.  And we are still too quick to put the onus on patients and families when things don’t work out.  Years later, a medical student was presenting to me when he said the patient’s mother was “a poor historian.”  She was using a phrase that is used very commonly by healthcare providers when a patient’s description of symptoms is difficult to follow.  I paused and pointed out that a historian is one who writes history.  He or she uses a variety of primary sources – documents, artifacts, verbal accounts – to develop a coherent historical narrative of events.  In healthcare, we are the historians, and the patient is the primary source.  It is our job to understand them and make sense of their medical narrative.  If we fail to do so, then we are the ones to blame, the “poor historians.”

That failure can lead to adverse consequences for the patient, and blaming them prevents a resolution.  Take, for instance, “no shows” – when a patient does not come in for a scheduled appointment.  The term itself is somewhat denigrating, and we typically view the consequence only from the provider perspective, such as decreased productivity or wasted resources.  We rarely think of it from the perspective of the patient: a lost opportunity to engage with their provider to address their health needs.  It might mean a delayed diagnosis, or a missed immunization or medication refill.  And our typical approach is to assume it was due to a failure on the part of the patient to remember they had an appointment.  The most common way to address missed appointments is through mail, phone, or text reminders.  Again, it’s blaming the patient, for either having a poor memory or lack of manners.  But what if the issue isn’t that the patient forgot?  What if they tried to take time off from work but couldn’t?  Or their transportation never materialized? Or they didn’t have the money for the co-pay?  Or they didn’t understand the appointment instructions because they were written in a language they don’t read?

Missed appointments are a potential source of health inequities.  National research, as well as our own data, show that a variety of marginalized groups are more likely to miss appointments than whites.  As with other health disparities, we have an obligation to understand and address the reasons behind these differences.  Equity demands that we help patients, not blame them.


It’s Not Personal

February 20, 2020

The new Equity Book Club at Children’s Minnesota is currently reading Robin DiAngelo’s White Fragility.  Written by a white woman, it explores why it is so difficult for white people to talk about racism.  This is true – perhaps especially true – even for many whites who see racism as a problem and want to address it.  While not everything in the book resonated with me, I did have a big “aha!” in reading it.  I have often struggled with the word “racism” because it seems so personal.  Racists are ugly, bigoted, mean-spirited, and often cruel.  This didn’t seem to describe me, or many of the people I know, even when they may be engaging in racist practices.  No wonder no one wants to use the word!

As DiAngelo explains, racism is different from bias, prejudice, bigotry, or discrimination.  The first three describe aspects of how we think, while the last is related to how we act.  These are all characteristics of an individual (though discrimination can be practiced by groups as well).  But they are not racism.  Racism is a system: it’s a set of beliefs, structures, practices, and power relationships that advantage one group over others.  DiAngelo posits that whites have used the term to describe individual thought or action as a way to deflect attention from the systemic aspects, and absolve themselves of blame.  If racists are bad people, then good people can’t be racist.

But racism is a system, the same way capitalism is a system.  By participating in the American economy – working, shopping, etc. – we are, regardless of our individual beliefs, capitalists.  Similarly, by participating in American society – built on a legacy of the white majority establishing advantages over people of color, and especially those of African heritage – we are, regardless of our individual beliefs, racists.  It is not a value judgment, merely a recognition of the current state of our system.  While in many ways less racist than the American society of 100 or even 50 years ago, our structures, practices, policies, and power relationships continue to advantage whites over others.  Only a minority of capitalists are ill-meaning people of the Gordon Gecko “greed is good” variety; similarly, only a minority of racists are of the Bull Connor variety.  Good people can still be racists.

Being able to see racism as a system, and not as a personal attribute, has allowed me to use the term more readily.  And we will not make progress unless we are able to talk openly and candidly about race and racism.


Failing Government Schools?

February 10, 2020

If you are old enough to remember the sit-com “All In The Family,” you will recall the opening song, “Those Were The Days.”  It was a satirical bit of nostalgia, the joke being that those good old days weren’t, in fact, as good as Archie Bunker would have us believe. (“We could use a man like Herbert Hoover again.”  Seriously?)  Alas, this misguided drive to make things great the way they used to be is again rearing its ugly head, this time in an effort to turn back the clock on education.

There is no doubt that our schools, and our education system as a whole, have a long way to go in giving our children the education they need and deserve to thrive.  And in recent years, there have been some demonstrable declines in achievement, along with stubbornly persistent gaps between majority white children and children in various other racial and ethnic groups.  But as an article in the Washington Post points out, things weren’t truly better in some mythical past.  As the infographic below shows, the percentage of children completing high school has risen dramatically since the “good old days” of the 1950s.  And since 1971, when the National Assessment of Educational Progress (NAEP) testing began, test scores rose consistently until the past couple of years, with the biggest gains coming among black students.  This progress, of course, came in the context of those supposedly “failing government schools.”

Most of these trends have come in parallel with a marked decline in childhood poverty. In 1958, 27.3% of children were living below the poverty line, compared with 17.2% in 2018.  There is a strong correlation between poverty and educational achievement, as shown in the graph below.  Again, in recent years there has been a stagnation in the decades-long decline in childhood poverty, an increase in child homelessness, and a widening of the wealth gap, which are likely to be strong contributing factors to the educational achievement trends over that same time period.

Not only have public schools by and large done well, as shown in these data, but other important improvements have come about not despite but because of government action.  Schools today throughout the country remain disturbingly segregated, but until the 1950s and 60s, schools in most of the South were segregated by law.  Current inequities in funding must be addressed, but they pale in comparison to the past.  One example (I saw this at the new Mississippi Civil Rights Museum – a must-see if you are in Jackson): in 1952, per-pupil annual spending on education in Mississippi was $464.49 for white kids, and $13.71 for blacks.  Title IX was also a game changer.  Before its passage in 1972, 1 in 27 girls participated in sports; that figure is now 2 out of 5.  To quote the “All In The Family” theme: “And you knew what you were then.  Girls were girls and men were men.”  Do we really want to go back there?

The word nostalgia has a modern positive connotation these days that differs from its historical sense.  It comes from the Greek roots “nostos,” return; and “algos,” pain.  A 1770 definition called nostalgia a “morbid longing to return to one’s home or native country, severe homesickness considered as a disease.”  Selective memory and biased experiences may create a false sense of “the good old days.” But we cannot solve today’s problems – we cannot make a better future for our kids – by moving backwards toward a non-existent better past.

 

 


Why Black History Month Matters

January 30, 2020

I learned how subjective and distorted the historical record can be as a history major writing my thesis on the Spanish Revolution of the 1930s. “What Spanish Revolution?” you are probably asking. My point exactly. In high school I had learned about the Spanish Civil War, but never once heard about the major political and social revolution occurring throughout much of the country at the same time. In this case, it’s probably not that surprising; Franco and the Fascists won the war, and as the old adage goes, “history is written by the victors.”

Thinking more broadly, beyond wars and battles, history is written by those in power. This affects what gets reported and remembered – why, for instance, Virginia has 242 Confederate monuments and Massachusetts has none. Yet those in power not only determine how history is written, but how it unfolds. The first integrated high school in Massachusetts was in 1831; the first in Virginia was in 1959.

Black History Month is more than a celebration of the richness of African American history. It is a chance to correct the historical record. When we learn about the first black astronaut (Guy Bluford, 1978), or the first black Supreme Court justice (Thurgood Marshall, 1967), we can appreciate their achievements and contributions to America and the world. But we also need to reflect on why it took so long, why Bluford didn’t get named to the NASA program until 20 years after the first white astronaut was named, why it took 180 years before the first African American was nominated to the highest court. We need to reflect on the ways that racism and white supremacy kept people like Bluford and Marshall and millions of other people of color from even the possibility of those achievements. We need to understand how racism not only twists the retelling of history, but its very shape.

Black History Month is a time to raise our awareness, and to re-educate ourselves about our history, about the many ways in which African Americans have been left out of not only the narrative but the events. Yes, we should celebrate the many ways in which African Americans have enriched our nation. But we should also remind ourselves of how much more could have been possible.


Three Cheers for Children’s “Whistleblowers”

December 6, 2019

“Publicity is justly commended as a remedy for social and industrial diseases.  Sunlight is said to be the best disinfectant,” wrote future Supreme Court Justice Louis Brandeis in 1915, advocating for the concept of transparency as a cure for corruption.  Hidden problems can’t be fixed.  Whether due to malfeasance or ignorance, problems are not always surfaced.  Sometimes, someone needs to pull back the curtains to let the light shine on it.  Or to use a different analogy, someone needs to blow a whistle.

The idea of ferreting out problems and bringing them to light has a long tradition in America, with its legacy of free speech and free press.  The first legislation to protect federal whistleblowers, the False Claims Act, was passed in 1863.  And investigative writers such as Ida Tarbell and Upton Sinclair reveled in their reputation as “muckrakers,” digging up problems ranging from dangerous working conditions to tainted meat to market manipulation by trusts.

As I said, problems are not always due to ill intent – the vast majority are not.  In healthcare, we have moved away from considering errors as a sign of individual incompetence, and seeing them instead as a symptom of a system that is not optimally designed to promote the desired outcomes and prevent the wrong ones.  But in a system as large and complex as a hospital, many problems would go unrecognized by those who can help optimize that system.  Hence the need for “sunlight,” in the form of what we now call Safety Learning Reports (formerly known as incident reports).

We encourage clinicians and all staff to report issues, especially when it’s just a potential issue that never actually causes a problem for a patient – a near miss – that might otherwise be brushed off as “no harm, no foul.”  That allows us to analyze the issues, find the root causes, and make the necessary changes to prevent future problems.  We learn from them.  The issues that are reported in SLRs can take many forms: incorrect medications, equipment malfunction, communication failures, etc.  In order to address issues of equity, we have recently pioneered a new type of SLR, one around issues of dignity and respect.  We always have more to learn.

Knowing about problems is the first step toward improvement.  Yet admitting problems is hard.  Which is why I am so proud of the fact that Children’s Minnesota has over 5000 safety learning reports in 2019, an all-time high.  It’s not that I’m glad we have problems.  I am thrilled that our people are becoming more and more willing to bring them forward.

By one measure, it’s a hard time for whistleblowing.  In New Orleans, a construction worker who raised safety concerns before the fatal collapse in October of the Hard Rock Hotel being built there appears to have been reported to immigration officials in retaliation for his speaking up.  And the response to the whistleblower in the impeachment case shows the courage needed even to reveal problems anonymously.  While healthcare has made great strides in moving from a culture of blame to a culture of safety, I understand the emotions that make speaking up about problems difficult.  This is why while we do not encourage anonymity, we do allow SLRs to be submitted anonymously, something not all health systems embrace.  I am encouraged that only about 10% of all SLR’s are anonymous at Children’s, and that number is decreasing.

So keep those lights shining, keep those whistles blowing.  And kudos to every one of our 5000 whistleblowers – three cheers!


Value – Is It Inconceivable?

November 15, 2019

“Inconceivable,” says Vezzini repeatedly in the movie The Princess Bride.  “You keep using that word,” replies Iñigo Montoya.  “I don’t think it means what you think it means.”

I use this quote frequently when certain words are used.  Transparency is one of them.  And now I’m beginning to think value is another.

The concept of value is simple: it means you get what you pay for.  Both a burger at Culver’s and a steak at Manny’s can be high value, if the quality of the meal is commensurate with the cost.  We often define value as quality divided by cost.  One can maximize value by increasing quality, decreasing cost, or ideally both.

“Value-based care” is another simple concept.  Traditionally in healthcare, providers are paid according to the volume and complexity of services provided.  Payment is the same regardless of the quality or outcomes of care provided.  If I do a test I get paid the same regardless of whether that test led to a correct diagnosis.  In fact, if I do two tests and reach a wrong conclusion from them, I would be paid more than doing only one of those tests and coming to the right diagnosis.  That would strike most people as silly.  In distinction, value-based care refers to being paid for delivering higher value.  So for example, I would be rewarded for making the correct diagnosis with the fewest tests, because I maintained quality while decreasing cost.  Or I might be rewarded for doing a somewhat more expensive test if it not only led to the right diagnosis but did so more quickly and with fewer complications (since timeliness and safety are also elements of quality).

Value-based care takes numerous forms.  A simple one is “pay for performance,” where a provider gets paid more for achieving certain performance targets.  More complex are various risk-based payment models, where the provider has at least some of the financial risk for care, and therefore has an incentive to maximize value.  For example, “shared savings” means that if a provider can provide the same quality care at a lower cost, the savings are shared between the provider and the payer.

However, like many simple concepts, the execution is more challenging, at least in part because different people throw around the word value to mean different things.  To most insurance companies, “value” exclusively means “cheaper”.  They pay no attention to the numerator of the value equation.  Pay for performance targets, for instance, are rarely about quality, only about cost.  There is little appetite for paying a little more for better outcomes, much less better patient experience or timeliness.  Providers, on the other hand, often want to use the value equation to claim that their quality is better, in order to justify higher costs.  Part of this is cultural: people in the healing professions find it hard to accept that anyone would settle for anything less than the best, even when best is hard to define.  And of course part of it is self-preservation.  After all, to paraphrase the comic strip Pogo, “We have seen the cost, and he is us.”

Which is why I actually prefer a different formula for value, one that doesn’t divide quality by cost, but equates value with quality in all its dimensions.  It is not a trade-off, but rather additive.

Value = quality = effectiveness + safety + experience + equity + efficiency.

This shows that you can’t maximize value unless you have care that is as effective as possible, as safe as possible, as timely and patient-centered as possible, and also as efficient as possible.  We fight over which aspect is more important, but frankly patients and families think they are all important.

I’ve been trying for some time and have gotten nowhere pushing this equation, so I’ll work with the trade-off.  But until payers learn to focus on the quality aspect, and providers on the cost, we’ll keep talking past each other, waving our respective value flags.  And agreement on truly value-based care will remain, well, inconceivable.


Seek and Ye Shall Find

October 10, 2019

Picture a networking breakfast where several Children’s Minnesota executives had the opportunity to meet in an intimate setting with some of the top health care talent in the entire Twin Cities region, in an effort to fill approximately 150 professional vacancies in areas like nursing, pharmacy, information technology, and others.

Did you notice that those potential employees were all people of color?

I had the good fortune to attend the semi-annual Twin Cities People of Color Career Fair the other day.  This was the first time Children’s has participated; it won’t be the last.  The brainchild of Sharon Smith-Akinsanya, of the Rae Mackenzie Group, the POC Career Fairregularly attracts over 600 attendees seeking opportunities with major employers in the region.

Children’s Minnesota has made improving the diversity and inclusiveness of our workforce a priority.  There are several good reasons for this.  First, helping to counter centuries of systemic oppression is just the right thing to do.  In addition, there is a growing body of research showing that more diverse organizations are more effective and successful.  This is particularly important in health care.  A workforce that better reflects the patients and communities served leads to better outcomes and patient experience and is a key strategy for closing the enormous health disparities we have in our society.

Increasing the diversity of our people isn’t going to just happen, and it can’t rely on a passive approach.  One important element is ensuring that we identify the best and most diverse talent in the first place.  To do that, we need to go beyond our usual approaches to recruitment.  Word of mouth referrals, internal promotions, college job fairs, recruitment firms, job web sites – all of these carry a historical legacy of biases and barriers to people of color.  The resulting applicant pool is therefore incomplete and unrepresentative.  If we want to have the broadest possible pool of talent from which to choose, we need to reach out in different ways: recruiting at historically black colleges and universities, reaching out to professional organizations oriented to people of color (e.g., National Medical Association), and events such as the POC Career Fair.

A large number of leaders and volunteers from Children’s staffed our booth, which was a buzz of activity all day.  We left with over 250 resumes from many outstanding and accomplished professionals.  It was a great first step toward bringing the most talented – and diverse – people to our organization and engaging them in our mission to partner with every family in raising healthier children.


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