Let’s Dance

March 29, 2017

Diversity is being invited to the party.  Inclusion is being asked to dance.

I heard this phrase at a recent half-day training in diversity, inclusion, and equity as part of my new employee orientation at Children’s Minnesota.  What a great metaphor for how we need to approach these issues!  By virtue of my status as a white, heterosexual, professional male, I rarely have to deal with exclusion on the basis of the typical “checkbox” categories.  But even the most privileged of us have all experienced occasions where we were somehow not included – where maybe we’ve been invited to the party but no one asked us to dance.  It reminded me of being a public high school graduate at a selective Ivy League university club.  The door wasn’t barred, but never having golfed or been a varsity athlete or summered on the Cape, I didn’t exactly fit in, and no one made much of an effort to make me comfortable.

I’m not sure any of those preppies worried about it, and honestly after about 10 minutes neither did I.  But the stakes were pretty low.  There were plenty other places to drink beer.  But when it comes to making decisions about healthcare for children and families from a plethora of backgrounds, or good leadership choices for a nearly billion-dollar organization, a narrow perspective can literally be deadly.  Diversity – inviting people with a full range of backgrounds, experiences, beliefs, and skills to the table – is necessary, but not sufficient.  Diversity is a start, but without true inclusiveness, it’s just window dressing.  Checking the boxes.

Which may be part of why diversity programs are at times viewed skeptically. Without a commitment to being not just diverse but inclusive, a team or organization can’t expect much to change.  This is a commitment to being not only proactive in seeking diversity of all kinds, but active in promoting inclusion of all in the decision-making process.

The fact that Children’s Minnesota chooses to devote fully one-third of its new employee orientation to this is a strong statement that we recognize how important inclusiveness is to our success, and to the health of the patients, families, and communities we serve.  It opened my eyes to the fact that as a leader, I have to invite a lot of different people to the party.  And then I need to ask them to dance.

Resegregating our Schools

March 7, 2017

Because of the historical racial patterns of church-going, it has been said that the most segregated time in America is Sunday morning.  Thanks to changes being pushed by, among others, Secretary of “Education” Betsy DeVos, that is likely to change to Monday morning, when school bells ring.

House Bill 610, in the words of its sponsor, “repeals the Elementary and Secondary Education Act of 1965.”  This 50 year old law, the backbone of American education policy through Democratic and Republican administrations, is being scrapped. The new law sharply limits the authority of the Department of Education, which is reduced to administering block grants to states.  More importantly, the law establishes a national voucher program allowing children to attend any public or private school, including home schooling, at taxpayer expense, and it requires states to allow complete school choice as a condition of receiving any public education funds. (As an aside, this seems to me to be exactly what the original Affordable Care Act tried to do to force states to accept the Medicaid expansion; it will be interesting to see if any progressive states choose to challenge this “coercion” under the Supreme Court ruling that invalidated that portion of the ACA. Turnabout is indeed fair play.). It will obliterate this nation’s long-standing commitment to public education.

As with health care, the forces behind this change are obsessed with free markets and choice as the answer to, well, everything.  They believe that competition is the only way to improve the quality of education, and that the public school monopoly is the root cause of our troubled education system.  The evidence does not support this.  I should note that finding unbiased research is challenging – for those who want to go straight to the sources, the nonpartisan National Center on School Choice has a comprehensive compendium of studies.  However, my admittedly brief review shows mixed evidence, with some studies showing choice is helpful, some showing it is neutral, and in some studies harmful. It seems fair to say that if 3 decades of research have failed to demonstrate a conclusive benefit of choice on education, it isn’t a slam dunk that choice is THE answer.  One issue is that choice can mean many things: choice among public schools, or charter schools, or vouchers to be used in non-public settings.  It’s therefore hard to draw a firm conclusion about “choice” overall.  But the evidence about vouchers specifically – the centerpiece of HB 610 – is less mixed.  It’s negative.  The largest, best designed studies have consistently shown that voucher students do worse than those who stay in traditional public schools.  The reason is unclear, but it would certainly seem to warrant caution before unleashing it on millions of American students.

If it were simply a matter of mixed evidence, this move to privatize education would be perhaps understandable as a reasonable gamble, a decision that could be refined with more and better research.  But at its heart, this privatization scheme is a radical undermining of core principles of American democracy.

Our commitment to public education goes back to the early days of the Republic.  Thomas Jefferson was a strong proponent of education as the foundation of a free society.  He was so committed to it that his founding of the University of Virginia was one of only 3 things he wanted to be remembered for in his epitaph (the Declaration of Independence and the Virginia Statute for Religious Freedom were the other two; he left out being president, much less the size of his electoral college victory).  Jefferson and others understood that a sound democracy depends on an educated and enlightened citizenry.  Education should not be available only to those of means, nor should it vary based on those means.  One important function of public schools in a democracy is as a place where diverse people from different walks of life could mingle, interact, exchange ideas, and learn a common cannon of democratic principles.  It is an important basis of a level playing field in a free society.  (Granted, the diversity of schools in Jefferson’s day was lacking, but the idea is still valid.) Jefferson believed there should be a constitutional right to education, and while there is no such right in our national constitution (as there is in the constitutions of 174 other nations), every one of the 50 states does include such a right.

Jefferson had nothing against religious instruction; indeed, he believed it to be an important supplement to public education.  But not a substitute for it.  Sectarian separation of education would undermine the development of the American people, which required schools to be inclusive.  And in fact, the various waves of private and parochial school growth, starting with the Irish Catholic schools in the mid-1800s, through the segregation academies in the South in the 1950s and 60s, have been driven in large part by a reaction to this inclusivity.  This has also been behind many other forms of “choice” including suburban white flight starting in the 1970s (my own family was part of this in New York) and the more recent push to restrict busing and promote “neighborhood schools.”  This is the ugly truth behind most school choice – it has frequently been used as a means of re-segregation.  No doubt most parents who choose to move to less diverse neighborhoods with “better schools” or elect to send their children to private schools are motivated primarily by the desire to make sure their kids are well educated.  But some simply don’t want their children going to school with “those” children, and even those among the majority of the well-intended need to be aware of the segregationist effects of their choices.

If challenged by my many friends who choose to send their children to private and parochial schools, I would try to convince them of the value, to both their own children and to society, of a shared public education experience for all, supplemented by the religious education of their choice.  In a democracy we can’t force this, only try to encourage it.  But we shouldn’t be encouraging the dismantling of public education.  And we shouldn’t be paying for private goods with public tax dollars.

The sponsors of HB 610 state it is about the repeal of the 1965 education act.  But they should really be saying it is about the undoing of Brown v. Board of Education.  I can’t wait for the bill that reinstates Plessy v. Ferguson.


March 1, 2017

We’re starting to see why those who supposedly hated Obamacare have been so reluctant to say what their replacement plan is.  It’s because it’s essentially Obamacare, minus the good things.  Their replacement is “Nobamacare.”  And it’s not likely to work.

First, let’s recall why health reform was such a big issue in the 2008 election.  15% of Americans were without health insurance at that point, the highest number since the creation of Medicare and Medicaid in the 1960s, and a figure that was increasing steadily over the prior 5 years. There are two basic approaches to trying to correct this.  One is a national health plan, where healthcare is either paid for (e.g., Canada) or provided by (e.g. Great Britain) the government.  The other is to work through the free market, using a combination of carrots and sticks to make private insurance more affordable, and incentivizing people to purchase it.  Over decades, and true to form, Democrats have tended to favor the former, while Republicans have promoted the latter.  Until, that is, Barack Obama was elected.  He essentially adopted the Republican idea of working through private insurance.  The Affordable Care Act – a.k.a. Obamacare – is almost exactly the same market-based plan as that instituted in Massachusetts by Gov. Mitt Romney (yes, the same Republican Mitt Romney who ran against Obama in 2012).  In fact, Democrats initially wanted to compromise on a hybrid where there would be a public option – that is, people would be able to choose among private plans or a public plan similar to Medicare – but that was dropped in a futile effort to get Republican legislators to support the Republican plan.

So, Obamacare was basically an effort to increase private insurance coverage (OK – there is one exception which I will get to in a minute). The reasons there were 48 million people without health insurance included that it was too expensive, that there were practices that prevented people from getting covered (e.g., companies refusing to give a policy to someone with a pre-existing condition), and that some people chose to take the risk of not having insurance. Trying to increase coverage through private insurance meant lowering costs, removing barriers, and incentivizing people who were choosing not to buy insurance.

The ACA plan to increase coverage addressed each of those.  To attack the issue of costs, Obamacare sought to create a better marketplace.  The theory was that if you could increase competition, costs would drop and most people without insurance would be able and willing to buy it.  Adam Smith wins again.  So the ACA created an insurance marketplace (sometimes called the “exchange”).  People who did not have insurance through their employer would be able to go on line, compare several insurance plans with information on what they covered, which providers were included, and how much they cost – sort of an Expedia for health care – and competition would drive down prices.  Removing barriers meant preventing insurance companies from excluding those with pre-existing conditions, or placing lifetime caps on coverage which would toss many people with expensive illnesses like prematurity or cancer off the policy part way through their treatment.  And finally, incentives included both carrots – premium and cost-sharing subsidies for lower income people, allowing young adults to stay on their parents’ plan, and requirements that preventive care be covered without cost-sharing – as well as the stick of the individual mandate, which required everyone to have insurance or pay a fine. (Here is where that private insurance exception comes in.  The architects of the plan realized that some people were too poor to buy insurance no matter how many carrots or sticks were offered.  Therefore, one element of the plan was to expand Medicaid to make sure that all those below the poverty line were covered.)

OK, with me so far?  Obamacare was a Republican plan, implemented by a Democratic president, to expand health insurance coverage through the miracle of the free market.

So what happened?  Well, as far as the primary goal of increasing the number of people with health insurance, it was a big but not complete success, with some 20 million additional people covered by 2016.  Also on the plus side, the tens of millions of people predicted by naysayers to lose their employer-based coverage – that never happened.  Of course, that still leaves a lot of uninsured – over 25 million.  Of those, half cite cost as the reason they remain uninsured.  And this is not surprising, since after an initial flattening, health insurance premium costs have started to increase more rapidly again (though at a slower rate than before the ACA).  Why?  There are several factors.  Many insurance companies, in an effort to gain market share quickly, underpriced themselves in the marketplaces.  As competitors dropped out, they jacked up their prices.  Also, fines for not buying insurance under the individual mandate were very low, so lots of healthy people continued to forego insurance, meaning companies were covering a sicker and more expensive population than they expected. Finally, despite its title, the Affordable Care Act did little to address the root causes of high health care costs including private insurance overhead.

So what do the Republicans plan to do?  Instead of expanding health insurance coverage through the miracle of the free market, it appears they plan to expand health insurance coverage through the miracle of the free market.


Yes, that’s right, the mainstay of Nobamacare is the insurance marketplace.  So what, you may ask, will be different?  That’s not entirely clear, but the main things seem to be changing the incentive system.  Rather than offering subsidies that vary based on income, Paul Ryan’s plan calls for tax credits and incentives to contribute to health savings accounts.  Both of these would be tilted toward those with higher incomes.  Moreover, the Medicaid expansion for the poorest would be reversed.  In other words, there would be fewer incentives for those most in need of incentive.  Given what we know about who is not covered – coverage increased least among the poor in states that did not accept the Medicaid expansion, and inversely proportional to income among those above the poverty line – that is simply not going to make things any better.  And like the original Obamacare, “Nobamacare” does virtually nothing to address healthcare costs.  If that were my plan, I’d be scared to release it too.

Now, I tend to agree that Obamacare has not lived up to its promise.  It has increased coverage, but less than hoped.  It has slowed healthcare spending, but less than hoped.  But the reason is not because it is insufficiently free market.  Rather, it demonstrates the limitations of the “free market” in healthcare.  Acknowledging the shortcomings in those ideas in the first place would be a start. Calling Obamacare something else because Republicans can’t abide the fact that a Democrat took credit for implementing their ideas isn’t the answer.  Maybe turnabout is fair play: today’s most prominent New York Republican, now that he realizes that healthcare turns out to be complicated, could steal the Democrats’ idea of “Medicare for all” and name it after the New York Republicans who also supported that idea in the 1970s.  He could really shake things up and introduce a single-payer Javitscare or Rockefellercare.  Now that would be interesting.  That would be progress.

Movin’ On

February 22, 2017

One of my favorite books is Ovid’s Metamorphoses, an epic verse collection of some 250 myths of transformation – Daphne turning into a laurel tree, Pygmalion’s statue into a woman.  I’ve always been fascinated with these stories, and the question of transitional stages.  When does Arachne stop being a human and start being a spider?  When did my sons stop being boys and become men?  At what point on the state line have I left Wisconsin and entered Minnesota?

As I go through my own major career and personal transition, I suppose it’s natural to be ruminating a bit on this. Transitions are hard and generate complex emotions.  I’ve heard the word “bittersweet” far too many times in the past few months, but I haven’t really come up with an adequate substitute.  For many of the figures in Ovid’s work, transformation was forced on them and it’s all downside.  There’s nothing bittersweet about being turned into a boar by an angry sorceress.  In my case, leaving Children’s Hospital of Wisconsin for Children’s Minnesota was a choice, and not an easy one.  I have treasured many things about my over 16 years here, both the many individuals I have come to work with and know and love, and the organization as a whole.  Many organizations have a statement of values; few truly live them.  CHW is one of them.  I will miss it here.

Looking ahead, I am heartened by the fact that my new professional home appears to be every bit as values-driven as my current one.  (Actually, that was a prerequisite to accepting the job.)  And I’ve discovered a one-to-one mapping of the values.  At CHW our first value is Purpose, acting in service to patients and families.  In Minnesota, it’s Kids firstCollaboration translates to Join together.  Integrity is encapsulated in Listen, really listen and Own outcomes.  And finally, the Minnesota value of Be remarkable – defined in part as “We are innovators, reimagining health care and going beyond what’s expected” – corresponds with the Wisconsin values of Innovation and Health, or being at our best.  No wonder it feels like such a great fit!

So back to that question of transformation – when do I stop being a Wisconsinite and start being a Minnesotan?  (Let’s leave sports teams out of this: I will continue to root for the Packers and Badgers.  Full stop.)  Perhaps that’s an irrelevant question.  One thing we’ve learned as a society in recent years is that many seemingly categorical things, including race and gender, are less discrete and more fluid than previously believed.  Maybe Arachne kept part of her humanness even when she transformed into a spider.  My sons are no doubt both boys and men.  And I’ll undoubtedly carry some of Children’s Hospital of Wisconsin with me to Children’s Minnesota.

Vaccination: A Societal Duty

February 9, 2017

CHW LogoWhen you go to a beach or a gym or somewhere else with bare upper arms visible, you’ll notice fewer and fewer people with the characteristic scar those of us born before 1972 have.  That’s the year routine smallpox vaccination was stopped in the US.  In 1980, the World Health organization declared smallpox globally eradicated.  I still recall the awe I felt when just a few years later I saw a movie about the effort to wipe out smallpox in my first year of medical school.  A disease that had once been a routine, and terrifying, part of human existence – outbreaks literally changed the course of history, and as recently as the 20th century smallpox caused an estimated 300-500 million deaths – was gone.  Gone.  All thanks to a relatively simple, and inexpensive, vaccine.

Efforts to prevent smallpox were reported as early as the 10th century in China; the modern approach to vaccination was introduced in 1796 by Edward Jenner.  Yet real progress in eliminating this scourge did not occur until mandatory vaccination began to be introduced in England and the US in the mid-19th century.  The reason is that smallpox, like many other highly transmissible infectious diseases, requires only a small number of susceptible individuals to remain viable in a population.  Unless everyone, or nearly everyone, is immune (either from prior infection or vaccination), the disease will persist and rear its ugly head as immunity wanes over time.

Fast forward to 2017.  Smallpox is gone, but other potentially epidemic diseases like measles remain.  And in our current climate of alternative facts and science denial, vaccines are under suspicion, raising the specter of a resurgence of dangerous, yet easily preventable infections.  There are two underlying issues, one scientific, and one philosophical.

First, are vaccines safe?  That’s easy.  Yes.  I’m not saying they are 100% risk-free.  There are rare serious reactions such as allergy or Guillain-Barre syndrome, and common but minor side effects like soreness and fever.  But numerous studies have shown that vaccines are at least as safe as almost every other medical intervention known.  And some of the more sensational claims – such as the link between vaccines and autism – have been utterly and thoroughly debunked.

Second, are mandatory vaccines justifiable?  In a free society, shouldn’t people have the right to refuse to be vaccinated for religious or other reasons?  That’s not as easy a question, but in my mind the answer is no.  In the phrase “free society” we tend, in modern America at least, to put too much emphasis on the “free” and less on the “society.”  Living in community with others always requires a balance between individual rights and societal responsibilities.  We accept that we all have an obligation to obey laws that are justly enacted.  We can’t harass our neighbors with loud noises or noxious odors.  We agree to all drive on the same side of the road, and not to get on the road if we’ve had too much to drink.  Why?  Because, as the saying goes “your right to swing your arms ends where my nose begins.”  By living in civil society, we agree to limitations on our individual rights for the protection of the health and safety of others.  Vaccines are the ultimate example of this.  Vaccines not only protect the health of the recipient, they also protect the health of others in the population as noted above.

Allowing individuals to forego vaccines in the name of personal liberty could be justified if the risk were limited to that individual.  But it is not.  If someone wants to enjoy the benefits of society, they need to bear the responsibilities, including the responsibility not to be a reservoir of illness to others.  To paraphrase Oliver Wendell Holmes, Jr., vaccines are the price we pay for civilization.

Is There a Right To Health Care?

January 18, 2017

CHW LogoWith the passage of the Affordable Care Act in 2010, I thought this question had been settled.  But as a new Congress and administration debate a replacement for Obamacare, it seems it’s re-opened the debate.  So I thought I would post a sermon I gave at Unitarian Universalist Church West in 2009; though a bit long for a blog post, it just seems very timely.

“It would be stupid to say that everybody is equal.  Some are rich and some are poor.  Some are beautiful and some aren’t.  Some are brilliant and some aren’t.  But when we get sick – then, everybody is equal.  Everybody must have equal right to the best medical treatment we can provide.  That is the basic rule of French health care. Surely, that is the basic rule of health care in every country.” – French physician Valerie Newman, quoted by TR Reid in “The Healing of America”

I want to tell you about a family from my resident clinic, over 25 years ago.  An adorable little 1 year old girl I’ll call Chantel and her 5 year old brother, being cared for by their grandmother after their mother left to pursue her drug habit full time.  The senior resident who took care of them before me told me how much I would like them, and sure enough, I quickly became attached to them.  Then when Chantel was 2, I did a routine blood count that came back markedly abnormal.  Because of her mother’s history, I suspected the worst, and soon confirmed that the little girl had AIDS.  I referred Chantel to several specialists to get the care she required, and she had to come to the hospital almost every couple of weeks for tests and treatments.  Her grandmother dutifully brought her to all these appointments, each time seeming a bit more stressed.  After a few months, the bottom fell out: she had missed too much work taking her granddaughter to the hospital, and she lost her job.  And of course, along with her job, she lost her health insurance.  My patient was now one of the uninsured. That statistic – with which Americans have been struggling for decades – now had a face, the face of a beautiful 2 year old girl with a devastating illness.  And having a loving grandmother is no match for being uninsured.  Appointments were missed, prescriptions went unfilled, and I learned later that eventually the little girl died.  While her death certificate listed the cause of death as complications of AIDS, I know what really killed her was our so-called health care system, supposedly the best in the world.

I will not ask for a show of hands, but I am quite sure that there are some in this room with the same condition as Chantel – uninsurance, that is.  If so, you are in plentiful company; with 45 million Americans affected, uninsurance is one of the most common health problems in this country, ahead of asthma and diabetes, and one that causes some 20,000 deaths each year.  Yes, we tend to think of lack of health insurance as an economic issue, but truly it is a health issue.  And even more importantly, I believe it is a moral issue, perhaps the biggest one facing our country right now.

One reason the health care debate has been so thorny and intractable since universal coverage was first proposed by President Roosevelt – Teddy Roosevelt, that is – is that it has been framed in terms of economics rather than morals.  Those who oppose health care reform find it easier to do so on economic grounds: it is much easier to oppose taxes or argue that the free market is more likely to achieve cost controls than to say it’s somehow “right” that Chantel should die because she couldn’t afford doctors or medications.  As Uwe Reinhardt, a Princeton health economist has said, “the opponents of universal health insurance cloak their sentiments in actuarial technicalities or in the mellifluous language of the standard economic theory of markets, thereby avoiding a debate on ideology that truly might engage the American public.”

And while the economic focus has been promulgated by opponents of reform, it has been readily accepted by many of its supporters as well.  Those who favor reform may feel that moral consensus is simply too difficult to achieve, and that selling health care reform as a way to promote economic growth and sound finances – as Bill Clinton among others did – is easier than asking the hard moral questions about who deserves access to health care and who is responsible to pay for it.  Yet as William Hsiao, a health economist at Harvard, says, “Before you can set up a health care system for any country, you have to know that country’s basic ethical values.  The first question is: Do people in your country have a right to health care?”  Our refusal to confront the moral dimensions of health care – our failure to make this basic question the starting point in the conversation – is a major factor in our lack of progress toward fixing our terribly broken health care system.

Let’s look at that first question: Do people in our country have a right to health care?  Few would argue that health care is an inherent or natural right like the right to individual conscience or self-preservation.  Rather, the question is whether health care is a “societal” right, something to which people are entitled by virtue of membership in that society.  Is health care such a right or, on the other hand, is health care a privilege, something to which no one is entitled except by his or her ability to pay for it?  In our society, for example, education is considered a right, while entertainment is a privilege.  Is health care more like education or entertainment?

Phrased that way, it would seem difficult to argue with.  Indeed, most of the world recognizes a right to health care.  Such a right is enshrined in the constitutions of most European countries, for example, as well as in the United Nations’ Universal Declaration of Human Rights, signed by the US in 1948, which states “everyone has the right to a standard of living adequate for the health and well being of himself and of his family, including food, clothing, housing, and medical care.”  Yet the US is unique among the wealthy developed countries in having no such legal statement of a right to health care, nor a health care system that would come close to upholding such a right.

Some have argued that a “right to healthcare” is incompatible with the American ethic of individual freedom and responsibility; achieving agreement on this would be as difficult as achieving agreement on abortion.  As a result, the question is rarely asked openly.  But is consensus truly so elusive?  Law professor Charles Dougherty has written “access to a decent level of health care is something Americans have come to expect.  We expect it not only if it can be bought, not only if it is given in charity, but as something which is ours, ours as a matter of right.”  And there are some data to support this contention.  For example, as long ago as 1952, the President’s Commission on the Health Needs of the Nation concluded that “access to the means for the attainment and preservation of health is a basic human right.”  President George H.W. Bush referred to a right to health care in his 1991 State of the Union Address, the first time that phrase had been used by a president.  And TR Reid, in his excellent recent book “The Healing of America”, reports that when Americans are asked in polls, “Do you think everyone has a right to medical care when they get sick?”, over 85% respond affirmatively.  Of course, the numbers vary somewhat depending on how the question is framed.  Nevertheless, there is broad agreement, it seems, on the basic principle.

With such a broad agreement, it should be easy to justify that response.  However, even among those who agree that people in the US have some kind of right to health care, it is trickier to get agreement on why that is so.  What is the moral underpinning of this right to health care?  In a society as diverse as ours, it should be no surprise that a variety of justifications have been put forward.  Some have invoked the Old Testament, where charity is not a suggestion but a commandment.  Walter Brueggemann, a biblical scholar at Columbia Theological Seminary in Decatur, GA, talks about the biblical notion of shalom, often narrowly translated as “peace”, but in his view it represents “God’s vision of well-being for all of the creation, at the individual and communal levels.”  Promoting peace, or shalom, means promoting the well being of all members of the human family.  Brueggemann also invokes the New Testament.  He points out, for example, that Jesus had an exemplary ministry healing the sick, and furthermore that he transformed the temple, which was the place for healing in the days before hospitals, from a bastion of the elite to a place of healing for all.  The Catholic Church seems to accept such an interpretation; for example, the Conference of American Bishops has stated plainly, “Every person has a basic right to adequate health care. This right flows from the sanctity of human life and the dignity that belongs to all human persons, who are made in the image of God. It implies that access to that health care which is necessary and suitable for the proper development and maintenance of life must be provided for all people, regardless of economic, social or legal status.”

I include these religious arguments mainly because this is a church, after all, but many of us would be uncomfortable basing a political right to health care on biblical imperatives.  But there are several other philosophical bases for the notion of a right to health care.  Such a right – indeed, rights in general – are framed in terms of justice.  The second principle that we as a UU congregation affirm is that of “Justice, equity, and compassion in human relations.”   What does justice mean in the social context?  Harvard scholar Michael Sandel, in his book titled simply “Justice”, writes “justice requires that everyone have equality of opportunity to make the most of their talents and skills.”

How does such a broad philosophical principle translate to practical political reality?  One answer comes from John Rawls, a highly influential 20th century American political philosopher.  He promoted the idea that justice is rooted in individual liberty.  Distributive justice in a society must be based on choices made freely by the members of that society.  But what does it mean to choose freely?  If we gathered people together to choose principles to govern society, we could not help but be influenced by our current position.  Those with many resources, such as good health insurance, would undoubtedly favor principles that would preserve that status quo, while the less advantaged would be less enthusiastic about it.  And those with advantages often have them not because they somehow deserve more, but at least in part because of accidents of birth and pure luck.  Similarly, the disadvantaged cannot always be said to have earned their misfortune.  Choices made under those conditions that are imposed on us, that are beyond our individual control, cannot be said to be truly free choices.  So Rawls proposed that questions of social justice cannot be decided fairly by people in their present situations, but must be addressed from the perspective of what principles we would agree to in a hypothetical initial situation of equality.  We should consider such principles behind what Rawls called a “veil of ignorance”; that is, assuming we know nothing of our current situation or status.  What would we consider just under such circumstances, where all are starting from the same position?  Rawls, and others, argue that if each of us were starting from a position of equality, we would surely favor a more egalitarian way of distributing fundamental resources, including health care, than currently exists.  That is, we would posit that all members of society should have equal opportunity to access to that resource – we would have a right to health care as a matter of distributive justice.

It is important to note that a right to health care does not mean complete equality of health, or even of care.  As TR Reid says, the question is not whether we will all have the exact same health care, but rather how much inequality are we willing to tolerate?   In this way, I would again draw the analogy to education.  As a society, we have decided that children have a right to an education, and therefore we have an obligation as a matter of justice to provide a basic level of education to all children.  But we tolerate some degree of difference between children who live in wealthier vs. poorer school districts, and we accept that there are co-existing public and private education systems that are no doubt unequal.  Moreover, the right to an education is no guarantee that all children will achieve the same grades or have the same IQ.  But we accept the idea that equal access to education – that “equality of opportunity to make the most of their talents and skills” – is a right in our society.  Acknowledging even this much of a right to health care would mark a major change and would have profound implications for how health care is delivered in this country.  Yet despite some indication that such a right to health care is broadly accepted in the US, it is rarely stated in such an explicit way.

Many writers and thinkers are uncomfortable with the notion of health care as a right.  The word “rights” has come to conjure images of aggrieved people demanding justice.  Think, for example, of civil rights – the first things that come to mind are the struggles for those rights, such as sit-ins, freedom rides, protests.  Demands for rights, justified as they might be, often come across as shrill or strident.  Such images of the underprivileged marching to demand health care is an uncomfortable one, and one that could easily be exploited by opponents of reform.

As an alternative, some have suggested that health care is not a right to which all are entitled, but rather that it is a charitable obligation that society is required to provide.  This distinction between a right and charity is not simply semantic.  The argument for a right is based on considerations of justice, while a charitable obligation is based on the principle of beneficence, the requirement to do good.  To some extent, this may be merely splitting hairs, since the end result of accepting such a moral obligation in the US as a matter of charity would result in similar changes in the way we structure health care to provide more universal access as would accepting health care as a right due us as a matter of justice.

But this is more than a semantic difference, in that rights are more readily defended, while charitable obligations are more easily cast aside, however reluctantly, in the face of competing obligations.  Charitable obligations should be upheld, but rights must be.  Much of the debate around health care has centered on the cost.  Sure, it would be the decent thing to do to provide health care for all, but we cannot afford to do so with so many other needs to be met.  If health care is merely an obligation based on a notion of charity, such a choice not to provide health care could be morally defensible, if other needs are deemed to be greater.  But what do those choices say about our values?  Uwe Reinhardt, the Princeton economist, says that each year’s federal budget should be thought of as a “memo to God” about our society’s collective priorities.  Right now, that memo suggests that we are not a particularly charitable people.

I believe that health care is a right – a matter of justice, not charity.  Good health is the basis for all other pursuits – one cannot work, play, or in any way thrive without health.  If justice requires, as Michael Sandel says, “equality of opportunity to make the most of our talents and skills,” then surely access to health care must be at the top of any list of claims to being our right in this affluent society.   What kind of country is it where wearing a semiautomatic weapon strapped to one’s thigh is a right, but going to a doctor when you are sick is a privilege?  When my patient Chantel was in the hospital with her complications from AIDS, she had a legal right to have a tutor provided for her, but no legal right to the medical care itself – that was provided as a matter of charity by the hospital.  Does that make any sense?  Shouldn’t she have as much right to health care as her grandmother, who is eligible for Medicare?  Shouldn’t we all?

As I noted earlier, deciding on whether there is a right to health care in a given society is the first question.  That question must be asked and answered plainly if we are to move forward in the current debate.  Once that question has been answered, and if indeed we have a right to health care, other moral questions follow in deciding how to guarantee that right.  These are perhaps thornier issues, and I will simply touch on them to stimulate your thinking.

The question of morality in the context of health care reform is perhaps most often raised around the issue of rationing to control costs.  Rationing exists in every system – the question is how is it done. If there is only so much to go around, how do we decide who gets what?  If health care is considered a commodity, as it is in our current system, then the decision is made by the market, with health care going to those who can afford it.  Make no mistake: this is rationing, albeit implicit rationing.  If one accepts that in general we get what we deserve and we deserve what we get, then this could be considered a fair and moral solution.  Health care according to ability to pay has a certain resonance in our society, with its emphasis on rewards for hard work, but surely one must recognize that the distribution of riches in our society has a certain element of arbitrariness.  Who would “deserve” a kidney transplant more, Mother Teresa or Bernie Madoff?  Is someone who chooses, or is forced, to work for a small business somehow less deserving of healthcare than another who works for a large corporation or government?  What about someone who is laid off – does she deserve health care less than her co-worker who survived the downsizing?

Now on the other hand, if health care is a right, such decisions need to be made in a way that is just and equitable, and that might mean explicit rationing.  This notion is, I confess, a difficult one.  If I were told that I could not have a kidney transplant because I was too old and less likely to benefit than my younger neighbor who needed it, I’m not sure I would agree that was fair and just.  On the other hand, if I were told that the choice between us were to be made by a flip of a coin, how would I feel if I lost?  How would I feel if I won?   If health care is a right, how do we fairly distribute the limited health care resources we have?

I have argued that a flaw in the discussion around health care has been the focus on economic rather than moral issues.  But some economic aspects of health care have a moral dimension we must confront.  One is the notion of profit making.  Is it moral to profit from the ill health of others?  We allow people to profit from selling food, water, and other necessities.  Why should health care be different?  But there are limits to our tolerance of profit.  When water was scarce in New Orleans in the wake of Hurricane Katrina, those who attempted to maximize their profit by charging many times the usual amount were almost uniformly denounced.  It discomfits us when profit turns into greed, or when someone attempts to take advantage of someone else’s desperation.  Selling food for a reasonable profit to those who can afford it is one thing; gouging the starving is another.  Where does health care fall?  Is someone seeking health care by definition in a disadvantageous situation, analogous to the thirsty Katrina victim?  Would this apply only in certain situations – say, limiting the ability to make a profit in an emergency, but allowing it for routine care?  If health care is a right, should there be limits to how much profit one should ethically make in health care?

A related question concerns compensation for those who work in the health care field.  I will tell you quite frankly that among the factors contributing to the high cost of health care in this country, and to the difficulty in accessing it for so many Americans, is the high salaries enjoyed by those in the medical profession – not only the multi-millionaire executives at the pharmaceutical companies and insurers, but the physicians.  In most developed countries with universal health care, physician salaries are comfortable but far less generous than in the US, typically one-quarter to one-third that of their American counterparts.  In France, Germany, and Japan, the average physician salary is similar to that of a midlevel corporate executive – comfortably middle class, but well below what many doctors in America have come to expect.  As one Japanese orthopedic surgeon says, “In Japan, doctors don’t get rich.  We make a decent income.  [And] we have the pleasure of practicing our specialty, and helping people who are in pain.  But getting rich is not part of the expectation.” Some of this is offset by far lower educational and malpractice costs, but in the end, it is also a moral issue.  If health care is a right, what is a fair compensation to those who provide that health care?

These are profound ethical questions that must be addressed as we shape the future of health care in this country.  The answers to these questions will say much about what we believe in and stand for.  They will be part of our “memo to God”.

Any meaningful reform of health care in this country must first recognize the right of all to an adequate level of care, not because we are charitable people, not because it is a nice thing to do, but as a matter of social justice.   The standard by which reform proposals should be judged is whether they recognize this right first and foremost.  In the time we have been sitting here this morning, two people have died as a result of lack of health insurance, two more victims like Chantel.  That is an injustice and a moral outrage, one we as Americans must not sit by and tolerate.  As the French doctor in my reading said, “ When we get sick, then, everybody is equal.  Isn’t that the basic rule of health care in every country?”  Well, it’s not, but isn’t it time it was?

Poverty and the Brain: A Glimmer of Hope

January 10, 2017

CHW LogoMichel de Montaigne said “Poverty of goods is easily cured; poverty of the mind is irreparable.”  As it turns out, he was both too optimistic and too pessimistic at the same time.  On the one hand, despite the efforts of both liberal and conservative governments over the past 50 years, the poverty rate is essentially unchanged.  So much for the easy cure.

I have written before of the effects of poverty on the developing brainA new study suggests that a relatively simple intervention may sharply ameliorate those effects.  The Strong African American Families Program, started at the University of Georgia, offers parenting skills-building to rural African-American families, in a 7-week series of two-hour sessions.  Researchers conducted a randomized trial of this program versus a control program.  Youth who were enrolled in the program at ages 11-13 were followed up at age 25 with brain MRI.  Among control youth, there was a strong negative correlation between the number of years of living in poverty between the ages of 11 and 18 (a time of rapid brain development) and the size of key areas of the brain related to emotions and short-term memory.  The longer the exposure to poverty, the smaller the hippocampus and amygdala.  But among youth enrolled in the program, poverty had no such effect!  14 hours of training in supportive parenting appears to have essentially wiped out the harmful effects of deprivation on brain development.

This study doesn’t address the question about whether these changes are in turn associated with cognitive, emotional, or behavioral problems, and more importantly whether the intervention can prevent such problems.  But it provides tantalizing evidence that, if we don’t have the societal wherewithal to deal with poverty and disparities, we may at least be able to repair some of the damage.

%d bloggers like this: